I am continuing to reflect on why I am finding coming out of lockdown and shielding much harder that I found being in it.
When we were all locked down, there was a huge element of ‘all being in it together’. No one could go anywhere (that was not medical or food shopping), because there was nowhere else to go. That fact that my illness and disability means that I could not go out made little difference, because no one could. I was no longer ‘missing out’ on anything, because everyone was. There was nothing really to miss out on. Though I realise it must have been far more frustrating for the able bodied with energy to burn and social contacts and hobbies to maintain.
(I am acutely aware that many people did have to continue going to work to keep what was needed in society going, who could not choose, or be instructed to stay at home. They had to go out, risked their lives doing so – and I am incredibly grateful to them.)
There was much talk at the time among the chronically ill community about how now everyone knew what it was like for us being stuck at home pretty much all day every day, relying only on the internet for social interaction. Hopefully that part of the experience that will be remembered.
Then as lockdown began to ease, places began to open, possibilities were there again. And along with the dilemmas coming out of shielding brought, were the knock backs.
As other people begin to return to A Normal, came the whole new realisation that I was left out again, remembering how isolated life with chronic illness can be. Things are happening that I cannot go to, however much I want to. In the online support that had grown, even if just in text messages or social media posts, people are missing because they have gone to find their new normal. I absolutely do not begrudge them that, they have lives to be getting on with and I would be if I could, society has to get back to some way of functioning – but it is beginning to make a massive difference to those of us ‘left behind’.
It is a reminder, if I needed it, of what I am excluded from, what I miss, what I can no longer do. None of this is helped by the fact that my health has deteriorated, unrelated to lockdown, but concurrent with it. I cannot even begin to return to my normal, because my normal is a different, lower, level now. But even if I could, the risks of coronavirus feels too risky for some of what I might have been able to enjoy before, like a trip to a coffee shop, unless I can sit outside away from a crowd.
So, all power to those who are finding a way to get back to some kind of life. I genuinely am delighted, but please don’t forget those of us whose lifestyle and restrictions you had a glimpse of for a few months. We are not your responsibility, and you should not feel bad for living what life you can again.
But perhaps there are some lessons that have been learned that can be carried onwards:
- remember something of what it was like to be stuck at home with nowhere to go
- remember the connections you made and don’t leave them behind,
- remember all those useful tools you have discovered that enable people to connect with what is happening from wherever they are and continue to use them with those still locked at home.
Meanwhile, I have to find again, the value and worth of my restricted life, outside of what everyone else is, or is not, doing. And I am very grateful to all those who are a part of my world and the life that they can get on and live.